Frequently Asked Questions
Below are some common questions about our DAN Study. Click a question to expand or collapse the answer.
Why does this site use cookies?
What is a UUID?
A UUID (Universally Unique Identifier) is a long randomly generated identifier used to anonymously distinguish one participant session from another. This allows the system to remember your survey progress without collecting personal information such as your name.
The UUID structure is governed by the Internet Engineering Task Force ↗ (IETF). The current Standards as of May 2024 are published as RFC 9562 ↗.
Why does this site think I am a new participant even though I completed part of the survey in an earlier session?
This study identifies returning participants using a cookie that stores an anonymous UUID in your browser. The system can only recognize returning participants through this browser cookie stored on your device. If you switch devices, use a different browser, or clear cookies; our system cannot retrieve your previous participation data and will treat you as a new participant.
If this occurs to you, your best option is to revisit this site from the same device and browser you used in your earlier session. Alternatively, you can retake our survey as a new participant with our thanks for your patience.
Why do I need to consent in order to participate in the survey?
Before participating in this study, you are asked to provide informed consent. This makes your voluntary participation in our study a conscious and deliberate decision to allow our research team to collect and retain your survey responses for five years as per our Privacy Policy at which time your data will be deleted.
Can I withdraw from the study after giving consent?
Yes, you may revoke your consent at any time from the Consent page. If you do, your responses will be permanently deleted from the database. The UUID assigned to you will still be retained for five years so we can remember your consent status and other user preferences.
How is my privacy protected?
This study collects and stores only the information necessary to conduct the research. We do not need to know your name or any other contact information so we do not ask for it. The only data we associate with you is a unique identifier called a UUID, and this allows us to recognize you as a returning participant in case you wish to complete our survey over multiple sessions.
The only identifiable contact information we ask for is your email address, and this is strictly optional. There are two reasons why you may be asked for your email address. First, if you wish to contact our research team through our Contact Form, we need your email address so we can reply to your message. Second, if you wish to enter our draw for an incentive reward, we need your email address so we can inform you if you win the draw.
For more information, see our Privacy Policy.
How long will my data be stored?
Your data is stored and retained in a secure database for five years as per our Privacy Policy, and only after you consent to the collection and storage of this data. After this time, your unique identifier (UUID), preferences, and survey responses will be deleted.
If you choose to revoke your consent at any time before this, your survey responses will be deleted immediately. The UUID assigned to you will still be retained for five years so we can remember your consent status and other user preferences.
Who can I contact if I have questions or feedback?
If you would like to ask us any questions or provide any feedback to our team, please contact the research team through our Contact page.